CHS senior receives Hayley's Hope/Michaela's Miracle scholarship

Joseph Adinolfi | Posted: Wednesday, June 30, 2010 11:22 pm

CHESHIRE - Cheshire High School graduate Kyle Nelson was one of five Connecticut residents to be awarded a $1,500 scholarship from the Hayley's Hope and Michaela's Miracle Multiple Sclerosis (MS) Memorial Fund during a reception at the Farmington country club on June 8.

For Nelson, the award is a culmination of three years of advocacy that began with his diagnosis in August 2007 - just before his football team, the Rams, began pre-season practice.

"At first I had no idea what it was, and all my friends that I first talked to didn't really know what it was either," said Nelson, who was diagnosed with MS after a case of optic neuritis caused him to briefly lose the ability to see out of his left eye.

Symptoms persisted for the first six months after his diagnosis, but Nelson never despaired. He has been symptom-free since early 2008.

Since his diagnosis, he has helped to raise about $10,000 for the Connecticut chapter of the National MS Society with K-Nel's - short for Kyle Nelson's - walk team.

Nelson refused to let MS affect his high school experience. He was a four-year member of the Rams and still plays sports - including basketball and golf - recreationally with his friends.

"Staying active has always been a huge part of my life," Nelson said.

He plans to attend the University of Connecticut School of Business in the fall, and said he's thinking about majoring in finance.

MS does not hamper Nelson's ability to live a normal day-to-day life.

"Honestly if you met him, you probably wouldn't realize that he has a disease," said Karen Butler, vice president of communications for the National MS Society's Connecticut chapter. "He has a great sense of humor. He really made raising awareness lots of fun. He has a very positive outlook - he's embracing life and taking on the world," said Butler.

Mark Ecke, head football coach at CHS, praised Nelson's positive attitude and said that he always remained optimistic even when he broke his leg during a summer practice before the beginning of his senior year - forcing him to give up his position as the team's starting center.

"He's a great kid," said Ecke. "He never felt sorry for himself."

"He was a great role model for the underclassmen," Ecke added.

Scholarship applicants submitted an essay to the National MS Society where a third party then makes selections and recommendations. Then from those recommendations it goes to the Hayley's Hope and Michaela's Miracle MS Memorial Fund Committee.

Nelson's essay, titled "I have MS but MS doesn't have me," reflected his attitude toward his disease.

"I wrote it from personal experience," said Nelson.

Multiple sclerosis is an autoimmune disease affecting the central nervous system. The myelin sheath that surrounds the cells becomes damaged and scar tissue builds up, interrupting communication between the cells.

More than 6,000 Connecticut residents are living with MS.

Hayley's Hope and Michaela's Miracle MS Memorial Fund is a fund of the National MS Society's Connecticut chapter.

It was established in 2007 to honor the memory of Jennifer Hawke-Petit, who had MS, and her daughters Hayley and Michaela Petit.

jadinolfi@record-journal.com

(203) 317-2208

 

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